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Helpful Links

There are many sites on the Internet with information for parents and families relating to blood and cancer disorders in children. Below you will find the beginnings of a list of great sites, along with their mission statements, to visit for more information. Please take some time to look through these sites. If you feel there is a site out there that should be added to our list, click on the Contact Us page and let us know. Thanks for visiting Gulf Coast Wings of Hope, Inc.

Hematology Related Links

  • Sickle Cell Information Center - The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. It is the mission of our organization to provide world class compassionate care, education, counseling, and research for patients with sickle cell disease. It is our mission to help break the sickle cycle. "The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her physician."

  • National Hemophilia Foundation - The mission of the National Hemophilia Foundation is education, research and advocacy on behalf of people with bleeding disorders. The NHF aims to cure blood disorders. Established in 1948, the NHF now has a national presence and many chapters throughout the country.

  • Hemophilia Foundation of Greater Florida - The Hemophilia Foundation of Greater Florida, a chapter of the National Hemophilia Foundation, has been helping people with bleeding disorders since 1996. We have helped the bleeding disorders community improve their quality of life by offering programs and services to support healthier and more independent lives.

  • Aplastic Anemia MDS International Foundation - Founded in 1983, the AA&MDSIF is a non-profit organization designed to serve as a resource for patient assistance, advocacy, and support; provide educational materials and medical information; and to fund medical research to find effective treatments and cure for Aplastic Anemia, Myelodysplastic Syndromes, and related bone marrow diseases such as PNH.

  • Fanconi Anemia Research Fund - The Fanconi Anemia Research Foundation's mission is to find effective treatments and a cure for Fanconi Anemia and to provide education and support services to affected families worldwide.

  • Diamond Blackfan Anemia Foundation - The mission of the Diamond Blackfan Anemia Foundation, Inc. is to "collectively and actively generate funds for the charitable and scientific purpose of furthering, by clinical study, laboratory research, publication and teaching, the knowledge of the disorder.

  • Neutropenia Support Association - The Neutropenia Support Association, Inc. is a volunteer driven registered charity, that was formed in 1989 to increase awareness and understanding of neutropenia, a blood disorder.

Oncology Related Links

  • Children's Oncology Group - To eliminate the personal, family and societal burden of cancer in children and adolescents by: Preventing and curing childhood and adolescent cancer through scientific discovery and compassionate care. Performing clinical and research trials. Conducting laboratory research. Identifying the causes of childhood cancer.

  • The National Children's Cancer Society - The mission of The National Children's Cancer Society is to improve the quality of life for children with cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, and education.

  • American Cancer Society - The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

  • Candlelighters Childhood Cancer Foundation- Candlelighters Childhood Cancer Foundation (CCCF) National Office is a national non-profit membership organization whose mission is to educate, support, serve, and advocate for families of children with cancer, survivors of childhood cancer, and the professionals who care for them.

  • Children's Cancer AssociationBringing the joy of music, the magic of wishes, the power of information, and compassion to seriously ill children and their families.

Fun For The Kids

  • When Ben Duskin was 5 years old he was diagnosed with Acute Lymphoblastic Leukemia (ALL). He spent alot of time playing video games to take his mind off of the side effects of the chemoptherapy. He decided he wanted a video game that could help kids fight cancer. Ben, along with Eric Johnston, a Software Engineer, designed a video game to do just that. Ben's social worker contacted the Make A Wish Foundation to help find a sponsor to build the game. After 7 months of hard work they came up with a game that kids can download and play for free. Visit Ben's Gamesite to get your copy today!!

  • www.kidzwithlukemia.com - "A highly interactive learning experience for children with Leukemia and ther families. Several pathways are available for children and adults to find information suited to their needs. Using games, puzzles, make-believe and video, this CD delivers expert medical explanations, real-life interviews and advice for coping with Leukemia."

  • www.condosforkids.org

Ways To Keep In Touch

  • Caring Bridge - A not-for-profit 501(c)(3) organization offering free personalized Web pages to those receiving care since 1997. The Caring Bridge story began after an unbelievable reaction to a Web page created for a premature baby. CaringBridge has grown steadily since 1997 and by the begining of 2004 has hosted more than 16,000 personalized CaringBridge pages, with more than 65 million visits, and more than two million guestbook entries. CaringBridge was developed using a unique grassroots approach. This service has developed ties with individuals, the medical community and corporate organizations through word of mouth. Those who visit a CaringBridge page are undeniably impacted.

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